The International Dravet syndrome Epilepsy Action (IDEA) League is the leading patient advocate support organization for Dravet syndrome and related genetic, febrile epilepsy disorders.

 

We are a powerful global partnership of parents and medical experts united in the goal of improving treatments for children with Dravet syndrome and related conditions, while empowering families to cope with the daily challenges of this disorder. We strive to reduce the impact of this disease on patients and their families by providing:

 

 Advocacy & Awareness

 Education & Updated Information

 Patient & Family Support

 Critical Data & Funding for Medical Research 

 

Progress made in the understanding and treatment of Dravet syndrome and related disorders has come from this vital collaboration. Without our team effort, there can be no victory over this devastating condition.

 

PLEASE JOIN US TODAY AND HELP US FIGHT TO END DRAVET SYNDROME!

 

Register to be included in our patient registry.

Volunteer in an area where you can contribute your passion and talents.

Financially support our work to help us find effective treatments and a cure.