IDEA League Family Network:

This group is for parents and caregivers of children diagnosed with Dravet Syndrome (formerly known as SMEI - Severe Myoclonic Epilepsy of Infancy) and related sodium channel disorders. Dravet syndrome is a neurodevelopmental disorder that starts in infancy. Severe intractable seizures are the primary symptom.

Information resources presented here are intended to help users better understand Dravet syndrome and related sodium channel disorders. Individuals are urged to consult with qualified health care providers for diagnosis and treatment and for answers to personal health care questions. Any advice given here by parents or other members should be discussed with the patient’s doctors before being acted upon. Information on this Web site is only intended as general summary of information that is made available to the public. It is not intended to provide specific medical advice..

Every effort has been made to ensure the accuracy and completeness of the electronic documents and resources provided on this Web site. However, the IDEA League makes no warranties, expressed or implied, regarding errors or omissions and assumes no legal liability or responsibility for loss or damage resulting from the use of information contained within.