Links

GENERAL INFORMATION AND RESOURCES

National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov/index.htm
The site of the National Institute of Neurological Disorders and Stroke, the part of the U.S. National Institutes of Health that covers brain disorders. News about research developments and clinical trials.

National Institute of Health
http://www.nih.gov/
NIH is the steward of medical and behavioral research for the Nation. Its mission is science in pursuit of fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to extend healthy life and reduce the burdens of illness and disability.

International League Against Epilepsy
www.ilae-epilepsy.org
International League Against Epilepsy: A preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by epilepsy. This website contains plenty of helpful information on epilepsy.

NORD
http://www.rarediseases.org/
The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Child Neurology Foundation
www.childneurologyfoundation.org
The Child Neurology Foundation is the outreach arm of the Child Neurology Society, providing information, education, and advocacy for child neurologists and other medical professionals—and for patients, parents, and member groups dealing with an array of neurologic conditions.

American Epilepsy Society
www.aesnet.org/
Website of the American Epilepsy Society, which promotes research and education for health care professionals.

CURE
http://www.cureepilepsy.org/home.asp
CURE Citizens United for Research in Epilepsy is a nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease.

National Association of Epilepsy Centers
www.naec-epilepsy.org
The website of the National Association of Epilepsy Centers. Find a comprehensive epilepsy center near you!

Finding A Cure for Epilepsy and Seizures (f.a.c.e.s.)
www.nyufaces.org
The website of Finding A Cure for Epilepsy and Seizures (f.a.c.e.s.). f.a.c.e.s.is an epilepsy organization that funds epilepsy research, education and awareness, and community building events for people with epilepsy.

Epilepsy Foundation
www.epilepsyfoundation.org/
Website of The Epilepsy Foundation, the U.S. national organization that works for people affected by seizures. A good place to get reliable information, especially on legal affairs and community services.

 

INTERNATIONAL SITES (IN ENGLISH)

A UK website
www.bbc.co.uk/health/epilepsy/
A UK website with information on epilepsy and local resources for UK residents living with epilepsy.

Epilepsy Bereaved
www.sudep.org
Epilepsy Bereaved is the leading voluntary organisation in the UK and Internationally on Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy related deaths.

The BC Epilepsy Society
www.bcepilepsy.com/
The BC Epilepsy Society is a non-profit, charitable organization dedicated to serving the British Columbians living with epilepsy, and their families.

The National Society for Epilepsy
www.epilepsysociety.org.uk/
The National Society for Epilepsy provides information and support to people with epilepsy. They also provide care for people with epilepsy through medical and residential services.

Canadian League Against Epilepsy
www.clae.org
Our members are all keen to take advantage of their passions and their knowledge in their respective fields to better respond to various basic needs of the epilepsy population, present and future. We also work in collaboration with several organizations such as the Canadian Epilepsy Alliance, the American Epilepsy Society and the North American Commission for Epilepsy.

Canadian Epilepsy Alliance (Available in French and English)
www.epilepsymatters.com
The Canadian Epilepsy Alliance (CEA) is a Canada wide network of grassroots organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families, through support services, information, advocacy, and public awareness.

Epilepsy Canada
www.epilepsy.ca/
The website for Epilepsy Canada, featuring information on Canadian resources as well as general facts. Also includes "Kidz Korner" with reassuring explanations for children.

Epilepsy Ontario
www.epilepsyontario.org/
Epilepsy Ontario: A website with information on epilepsy and support and volunteer opportunities for the local Ontario epilepsy community.

Epilepsy Toronto
www.epilepsytoronto.org/
Website of Epilepsy Toronto, a non-profit oragnization dedicated to the promotion of independence and optimal quality of life for all people with epilepsy and their families. They offer a range of epilepsy support services, information programs and education to the public.

Epilepsy Association Australia
www.epilepsy.org.au
Epilepsy Association Australia: A growing site with information offered separately for adults, children, and teens. Good general information for everyone and offers of many services for people in Australia.

Epilepsy Action
www.epilepsy.org.uk/
The website of Epilepsy Action, the working name of the British Epilepsy Association.

Epilepsy Support
www.epilepsysupport.org.uk/
Epilepsy Support: A British site offering patient-to-patient community support.

Epilepsy Foundation of Victoria, Australia
www.epinet.org.au/
The website of the Epilepsy Foundation of Victoria, Australia. You can participate in rating the websites included in the interesting list of links here, including some in other languages. Also some good practical tips.

International Bureau for Epilepsy
www.ibe-epilepsy.org/
The website of the International Bureau for Epilepsy, a European-based group dedicated to improving the non-medical aspects of life with epilepsy around the world. The site also includes links to groups in many countries.


INFORMATION EN ESPANOL

Las diez preguntas más frequentes [sobre la epilepsia] — Fundación Epilepsia
www.epilepsyfoundation.org/contestacion/fpr.cfm

http://www.nichcy.org/spanish.htm
Publicaciones en Español de El Centro Nacional de Información para Niños y Jóvenes con Discapacidades (NICHCY)

www.noah-health.org/es/search/health.html
Temas de salud a NOAH (New York Online Access to Health)

www.ssa.gov/espanol/
Información en Español de La Administración del Seguro Social.

http://www-leland.stanford.edu/group/ketodiet/
La Dieta Cetogénica: Materiales de referencia para ustedes y su familia, el médico o el pediatra, en español (Centro de Epilepsia de Stanford).

 

INFORMATION IN OTHER LANGUAGES

Épilepsie Canada
http://www.epilepsy.ca/fran/mainSetFR.html
Épilepsie Canada (French)

www.ablelink.org
http://www.ablelink.org/public/french.htm
En Ligne Directe est un cyber-réseau d'amitié sûr et amical où les jeunes atteints de maladie ou de limitations communiquent avec d'autres jeunes comme eux. (French)

Associazione Italiana Contro l'Epilessia (Italian)
http://www2.comune.bologna.it/bologna/aice/aice.htm
Associazione Italiana Contro l'Epilessia (Italian)

Dansk Epilepsiforening (Danish)
http://www.epilepsiforeningen.dk/
Dansk Epilepsiforening (Danish)

Japanese Epilepsy Network
http://epn.hal.kagoshima-u.ac.jp/JASTS/jastsk.html
Japanese Epilepsy Network

Korean Epilepsy Support Group
http://my.dreamwiz.com/annachok/
Korean Epilepsy Support Group (Korean character set required)